About Us

Introducing ENCA

ENCA is the European Network for Children with Arthritis.

ENCA is organised as an informal network for national associations working with children and young people with paediatric rheumatic diseases and their families.

Founded in Paris in 2002.

ENCA organisation

ENCA has six elected board members, with a Chair, Vice-Chair, Treasurer, Secretary and Website Administrator.

Any association or organized group of parents within Europe is eligible to apply to join ENCA, free of charge.

ENCA is financially supported by PReS, the Paediatric Rheumatology European Society.

Current board members (2018):

Mirjam Kepic, Društvo za pomoč otrokom z imunskimi boleznimi (Slovenia)



Treasurer - PReS representative : 
Wendy Costello,  ICAN (Ireland)





Anita van de Louw, Jeugdreuma Vereniging (Netherlands)




Vice secretary :
Sammy Ainsworth, Alder Hey Children’s Hospital - Liverpool (UK)




Research group :
Simon Stones 
Trustee, Fibromyalgia Action UK
Trustee, RAiISE
Treasurer, ENFA
Working Group Member, EULAR Young PARE
Working Group Member, EMEUNET

Webmaster : 
Anton Gruss, KOURIR association (France)




Board member :
Saskya Angevare, KAISZ (Netherlands)






To contact us


ENCA cooperation

ENCA cooperates with a number of international organisations with shared goals in rheumatology.
These include: