About Us

Introducing ENCA

ENCA is the European Network for Children with Arthritis and Auto-inflammatory diseases

ENCA is organised as an informal network for national associations working with children and young people with paediatric rheumatic diseases and their families.

Founded in Paris in 2002.

ENCA organisation

ENCA has seven elected board members, with a Chair, Vice-Chair, Treasurer, Secretary and Website Administrator.

Any association or organized group of parents within Europe is eligible to apply to join ENCA, free of charge.

ENCA is financially supported by PReS, the Paediatric Rheumatology European Society.

Current board members (2022):


President - PReS representative : 
Wendy Costello,  ICAN (Ireland)





Vice president :
Saskya Angevare, KAISZ (Netherlands)




Secretary - Treasurer : 
Anita van de Louw, Jeugdreuma Vereniging (Netherlands)




Board member :
Christophe Normand, KOURIR (France)                                                                                                                                                   




Board member :
Richard BEESLEY, Juvenile Arthritis Research (UK)                                                                                




Board member :
Jeanne Linneweever                                                                             





Board member :
Natalie Billiard                                                  







To contact us


ENCA cooperation

ENCA cooperates with a number of international organisations with shared goals in rheumatology.
These include: