ENCA is the European Network for Children with Arthritis and Auto-inflammatory diseases
ENCA is organised as an informal network for national associations working with children and young people with paediatric rheumatic diseases and their families.
Founded in Paris in 2002.
ENCA has seven elected board members, with a Chair, Vice-Chair, Treasurer, Secretary and Website Administrator.
Any association or organized group of parents within Europe is eligible to apply to join ENCA, free of charge.
ENCA is financially supported by PReS, the Paediatric Rheumatology European Society.
Current board members (2019):
President - PReS representative :
Wendy Costello, ICAN (Ireland)
Vice president :
Saskya Angevare, KAISZ (Netherlands)
Vice secretary :
Sammy Ainsworth, Alder Hey Children’s Hospital - Liverpool (UK)
Research group :
Trustee, Fibromyalgia Action UK
Working Group Member, EULAR Young PARE
Working Group Member, EMEUNET
Anton Gruss, KOURIR association (France)
Board member :
Christophe Normand, KOURIR (France)
ENCA cooperates with a number of international organisations with shared goals in rheumatology.